Parkinson’s disease is a chronic neurodegenerative condition that affects people of all ages. While many associate it with tremors, the first sign is often slowness of movement. Sheree Ambrosini, Parkinson’s WA Clinical Lead, explains, “Not everybody has tremor. People think of Parkinson’s as a tremulous disease, but it presents differently for everyone.”
How Common Is Parkinson’s?
At least 15,000 people in Perth have Parkinson’s, though this number is likely higher. Accessing neurologists for diagnosis can be challenging due to demand. “If someone suspects they have Parkinson’s, they should talk to their GP and get a referral to a neurologist,” says Sheree “At Parkinson’s WA, we support those with a diagnosis, provide guidance, and help connect them to specialists.”
Signs and Diagnosis
Tremors aren’t always the first sign. Slowness of movement is key. Other symptoms include rigidity, balance issues, and reduced arm swing while walking. There is no definitive test for Parkinson’s.
“Diagnosis is based on clinical judgment,” says Sheree. “Neurologists observe movement, posture, and response to Parkinson’s medication.” MRI scans and blood tests rule out other conditions.
How Parkinson’s Progresses
Parkinson’s progresses slowly. Medications help manage symptoms for 7 to 10 years. Exercise is also crucial.
“Strength-based exercises support neuroplasticity,” says Sheree “They help the brain create new pathways and improve balance.”
Falls become more common as the disease progresses. Sheree advises practical strategies like sitting down to change clothes and working with occupational therapists to make home adjustments.
Getting Support from Parkinson’s WA
Parkinson’s WA has supported people for over 26 years. Their team of seven nurses helps over 3,000 people in Perth and runs outreach clinics across WA.
“If you call Parkinson’s WA, you may even speak to our CEO or office manager,” says Sheree. “We are here five days a week to support anyone with a diagnosis.”
Support groups, mentorship programs, and community events like Walk in the Park provide vital connections.
“Knowing you’re not alone makes a huge difference,” Sheree emphasises.
Free Support for People with Parkinson’s
One of the most common questions about Parkinson’s WA is how their services are funded. The organisation operates as a not-for-profit, with funding coming from a mix of government support, community donations, and partnerships like the McCusker Foundation. These funds allow Parkinson’s WA to provide specialised nursing services to those in need, free of charge.
“We really rely on the generosity of the community,” explains a Parkinson’s nurse. “There’s no obligation for people to donate, but we do encourage them to become members.”
For a small annual fee, around $40 per year, members help sustain the service, ensuring support remains available for anyone who needs it.
How You Can Help
April is Parkinson’s Awareness Month, marking the birthday of Dr. James Parkinson, who first described the condition in 1817. During this time, Parkinson’s WA runs fundraising initiatives, including a matched donation campaign with Beyond Bank on April 9 and 10.
In September, the organisation also hosts A Walk in the Park, their biggest fundraising event of the year.
For those wanting to contribute, donations go directly toward supporting the Parkinson’s Nurse Service, which provides in-home visits and assistance to those managing the condition. These nurses are a vital resource, helping individuals maintain their independence while ensuring they receive the right care.
Who Does Parkinson’s Affect?
Many people assume Parkinson’s only affects the elderly, but that’s not the case. The youngest client currently supported by Parkinson’s WA is 19 years old, while the oldest is 101.
“The most common age of diagnosis is 65, but about 40% of cases occur in people younger than that,” explains Sheree.
Despite the wide age range, stigma remains a challenge, particularly for younger individuals who may still be working or raising families. Some people hesitate to reach out for help or interact with Parkinson ’s-related social media pages due to concerns about being identified.
“We’re trying to break down that stigma,” says Sheree. “Parkinson’s can affect anyone, your brother, sister, parent, or grandparent.”
What Causes Parkinson’s?
While the exact cause of Parkinson’s is unknown, research suggests a mix of genetic and environmental factors. In some cases, the disease runs in families, but most people diagnosed with Parkinson’s do not have a family history.
One of the major concerns is exposure to chemicals and pesticides, particularly paraquat, a widely used weedkiller that is still legal in Australia. Researchers are actively working to better understand the connection between environmental toxins and Parkinson’s, with hopes of reducing risk factors in the future.
Living Well with Parkinson’s
Despite the challenges, people with Parkinson’s can take steps to improve their quality of life. One of the most important recommendations from specialists is exercise.
“When someone is prescribed Parkinson’s medication, they should also be prescribed exercise,” says Sheree
The type of exercise varies based on individual needs and abilities. Options include:
- Cardio workouts like walking or cycling
- Strength training, even with light weights or resistance bands
- Specialized programs, like PD Warrior, are designed for people with Parkinson’s
- Hydrotherapy and personal training, tailored to individual needs
The diet also plays a role, with experts recommending a Mediterranean-style diet rich in healthy fats, fruits, vegetables, and nuts to support brain health.
Accessing Support
Parkinson’s WA provides education and support not only for individuals living with the condition but also for aged care facilities and caregivers. Their team works to ensure that medications are properly managed and that those with Parkinson’s receive the best possible care.
If you or a loved one is affected by Parkinson’s and would like to learn more, visit parkinsonswa.org.au or follow Parkinson’s WA on Facebook for updates and upcoming events.
For direct support, you can also call their office or visit their community centre to speak with a team member.